Empowering People with Parkinson’s: Reframing Self-Management in Parkinson’s—A Critical Reflection of Current Practice
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| Publicado en: | Healthcare vol. 13, no. 21 (2025), p. 2673-2684 |
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MDPI AG
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| Acceso en línea: | Citation/Abstract Full Text + Graphics Full Text - PDF |
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| 045 | 2 | |b d20251101 |b d20251114 | |
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| 100 | 1 | |a Jones, Julie |u School of Health, Robert Gordon University, Aberdeen AB10 7AQ, UK | |
| 245 | 1 | |a Empowering People with Parkinson’s: Reframing Self-Management in Parkinson’s—A Critical Reflection of Current Practice | |
| 260 | |b MDPI AG |c 2025 | ||
| 513 | |a Journal Article | ||
| 520 | 3 | |a Background: Parkinson’s is among the fastest-growing neurological disorders, characterised by motor and non-motor symptoms that affect daily function and quality of life. With no cure, sustainable management strategies are essential. Self-management is a key component, enabling people with Parkinson’s to actively manage symptoms, treatment, and lifestyle, reflecting the wider long-term conditions (LTCs) approach to improving outcomes and well-being of people affected by these conditions. However, more than half of people living with Parkinson’s (PwP) report difficulties in engaging with self-management, often due to limited knowledge, confidence, or access to tailored interventions. Aims: This paper explores the theoretical underpinnings, key drivers, and current evidence base for self-management in Parkinson’s. It examines the relevance and limitations of applying LTC models to a progressive and highly individualized condition such as Parkinson’s. Despite global guideline recommendations, self-management support remains a significant unmet need. While self-management has the potential to improve adherence, symptom control, and activity levels, uncertainties remain about what constitutes effective, meaningful support. There is a need for a nuanced, person-centered approach embedded within integrated care systems. Conclusions: To date, self-management has not demonstrated sustained benefits for PwP, in part due to limitations in how current models are conceptualized and delivered. This paper highlights the challenges of existing approaches and proposes a new framework that enables and empowers PwP and their support networks to live well with Parkinson’s. Rooted in partnership, enablement, and co-production, the proposed model promotes the development of personalized toolkits of strategies that help individuals navigate and mitigate the challenges of life with Parkinson’s. This reframing has important implications for future research, clinical practice, and policy. | |
| 653 | |a Problem solving | ||
| 653 | |a Quality of life | ||
| 653 | |a Exercise | ||
| 653 | |a Collaboration | ||
| 653 | |a Patient-centered care | ||
| 653 | |a Intervention | ||
| 653 | |a Medical personnel | ||
| 653 | |a Decision making | ||
| 653 | |a Empowerment | ||
| 653 | |a Chronic illnesses | ||
| 653 | |a Well being | ||
| 653 | |a Peer tutoring | ||
| 653 | |a Professionals | ||
| 653 | |a Self-efficacy | ||
| 653 | |a Global health | ||
| 653 | |a Education | ||
| 653 | |a Parkinson's disease | ||
| 700 | 1 | |a Ramaswamy Bhanu |u School of Health and Social Care, Sheffield Hallam University, Sheffield S10 2BP, UK; b.ramaswamy@shu.ac.uk | |
| 773 | 0 | |t Healthcare |g vol. 13, no. 21 (2025), p. 2673-2684 | |
| 786 | 0 | |d ProQuest |t Nursing & Allied Health Database | |
| 856 | 4 | 1 | |3 Citation/Abstract |u https://www.proquest.com/docview/3271031621/abstract/embedded/160PP4OP4BJVV2EV?source=fedsrch |
| 856 | 4 | 0 | |3 Full Text + Graphics |u https://www.proquest.com/docview/3271031621/fulltextwithgraphics/embedded/160PP4OP4BJVV2EV?source=fedsrch |
| 856 | 4 | 0 | |3 Full Text - PDF |u https://www.proquest.com/docview/3271031621/fulltextPDF/embedded/160PP4OP4BJVV2EV?source=fedsrch |